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A Mother's Devastating Loss Starts a MovementBALTIMORE, Sept. 2, 2019 /PRNewswire/ -- After Julie Odar's water broke at 16 weeks (Preterm Premature Rupture of Membranes or PPROM), doctors advised that...

Making Waves for Coral

Image courtesy of Rachel Shadley-Barlow

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The PPROM Regimen

MoMMA’s Voices offers opportunities to drive real change in maternal health

Speak up, even if your voice is shaking

July 4, 2019 - The PPROM Foundation is pleased to announce it has joined MoMMA’s Voices, a national coalition of patient organizations and individuals with lived experiences or those who represent them, using their voices to reduce maternal complications in pregnancy and the postpartum period.

With the wave of media and public attention on the growing and unacceptable rates of maternal mortality and severe morbidity in the United States, this coalition answers the need for a strong consumer voice to advocate, amplify, and illustrate these issues in the US. MoMMA is short for Maternal Mortality and Morbidity Advocates, which captures the coalition’s mission.

For survivors and family members of The PPROM Foundation, we encourage you to visit www.mommasvoices.org/champions to share your story, join the training, and use your voice to be a champion for change. If you have already shared your story with The PPROM Foundation or with another source, you can simply copy your link into the story section after completing the demographic section of the submission.

The PPROM Foundation joins the coalition that includes other organizational members Amniotic Fluid Embolism (AFE) Foundation, Black Women’s Health Imperative, Every Mother Counts, National Accreta Foundation, Preeclampsia Foundation, 2020Mom, The Shades of Blue Project, Sepsis Alliance, HER Foundation, PCOS Challenge, APS Foundation, The Shane Foundation, Save the Mommies and others still to be confirmed.

The coalition’s overarching goal is to provide a home and platform for the patient voice to actively engage in efforts to make childbirth safer in our nation. Issues like patient-provider communications, racial disparities, quality of healthcare delivery, and patient information cut across all medical conditions and heavily contribute to preventable maternal deaths and illness. Most importantly, it will provide training and tools to equip advocates to become effective champions for change.

For more information about MoMMA’s Voices, please contact Coalition Program Manager Nicole Purnell at Nicole.Purnell@preeclampsia.org.