News

Response to Supreme Court decisions Moyle v. United States & Idaho v. United States

DENVER, Co. / Press Release / -- June 27, 2024/ -- Supreme Court Justice Alito referenced The PPROM Foundation this past week in his dissenting opinion on Moyle v. United States and Idaho v. United States. The PPROM Foundation is a national non-profit organization dedicated to supporting families impacted by Preterm Premature Rupture of Membranes (PPROM). Read the full response here

State of Maryland declares PPROM Awareness Day

ANNAPOLIS, June 1, 2024 / Press Release / -- Governor Wes Moore proclaims PPROM Awareness Day June 1st - June 2nd 2024. Preterm Premature Rupture of Membranes (PPROM) is a serious pregnancy complication and the leading identifiable cause of preterm birth. PPROM affects 140,000 U.S. families annually. PPROM is when the amniotic sac breaks before the onset of labor prior to 37 weeks gestation. Following a diagnosis of PPROM, patients need access to affordable, equitable medical care including high-risk specialty care from a maternal-fetal medicine specialist during the pregnancy. Nearly all pregnancies with PPROM will delivery prematurely, with survivors requiring extensive medical interventions including neonatal intensive care. Sadly, many families have experienced pregnancy loss or infant loss as a result of PPROM, causing significant long-term impacts on the mental health of pregnant people. Patients must have accurate information in order to make informed decisions about their medical care. It is important that stakeholders join together to raise awareness, promote research and work to decrease occurrences of PPROM.

Senate of Maryland Recognizes PPROM Advocate

ANNAPOLIS, March 26, 2024 / Press Release / -- Maryland Senator Kathy Klausmeier and colleagues in the Senate recognized Making Waves for Coral, in partnership with The PPROM Foundation, who are working to increase awareness about PPROM (Preterm Premature Rupture of Membranes) during the month of June. Julie Odar, Founder of Making Waves for Coral, was present for the Reading of the Resolution recognizing her efforts to raise awareness about this serious pregnancy complication.

Maryland Governor Wes Moore Lights the State House Blue for PPROM Awareness Month

ANNAPOLIS, June 15, 2023 / Press Release / -- Governor Wes Moore met with Marking Waves for Coral Founder and PPROM Advocate Julie Odar to light the Maryland State House blue in honor of PPROM Awareness Month. Governor Moore shared, "I stand in solidarity with families affected by PPROM. Their strength and resilience in the face of such a devastating condition is commendable.

PPROM (Preterm Premature Rupture of Membranes) can be caused by a variety of factors, including infection, inflammation, or weakening of the membranes. Once diagnosed, quick medical attention is crucial for managing the risks associated with preterm birth.

Awareness of PPROM is important for people to recognize symptoms, seek medical intervention, and help support families going through this challenging experience.

Let us continue to raise awareness and support those impacted by this condition. We'd also like to thank Making Waves for Coral for their work on this important issue."

A Mother's Devastating Loss Starts a Movement

BALTIMORE, Sept. 2, 2019 /PRNewswire/ -- After Julie Odar's water broke at 16 weeks (Preterm Premature Rupture of Membranes or PPROM), doctors advised that nothing could be done to safely continue the pregnancy. Against all odds, Julie managed to stay pregnant for 17 days before learning that her child had passed away; Julie delivered baby Coral Francesca soon thereafter. Read more here

Image courtesy of Rachel Shadley-Barlow

Mother Delivers Healthy Full Term Twins After Water Breaks at 14 Weeks With Support From The PPROM Foundation

HEINSVILLE, Ga., July 22, 2019 /PRNewswire/ -- Rachel Shadley-Barlow's water broke at 14 weeks (Preterm Premature Rupture of Membranes or PPROM); doctors advised that nothing could be done to safely continue the pregnancy. Rachel and her husband Jesse decided to watch and wait, supported by an online peer-support network and guidance from The PPROM Foundation. Read more here.

Image courtesy of Rachel Shadley-Barlow

MoMMA’s Voices offers opportunities to drive real change in maternal health

Speak up, even if your voice is shaking

July 4, 2019 - The PPROM Foundation is pleased to announce it has joined MoMMA’s Voices, a national coalition of patient organizations and individuals with lived experiences or those who represent them, using their voices to reduce maternal complications in pregnancy and the postpartum period. 

With the wave of media and public attention on the growing and unacceptable rates of maternal mortality and severe morbidity in the United States, this coalition answers the need for a strong consumer voice to advocate, amplify, and illustrate these issues in the US. MoMMA is short for Maternal Mortality and Morbidity Advocates, which captures the coalition’s mission. 

For survivors and family members of The PPROM Foundation, we encourage you to visit www.mommasvoices.org/champions to share your story, join the training, and use your voice to be a champion for change. If you have already shared your story with The PPROM Foundation or with another source, you can simply copy your link into the story section after completing the demographic section of the submission.

The PPROM Foundation joins the coalition that includes other organizational members Amniotic Fluid Embolism (AFE) Foundation, Black Women’s Health Imperative, Every Mother Counts, National Accreta Foundation, Preeclampsia Foundation, 2020Mom, The Shades of Blue Project, Sepsis Alliance, HER Foundation, PCOS Challenge, APS Foundation, The Shane Foundation, Save the Mommies and others still to be confirmed.

The coalition’s overarching goal is to provide a home and platform for the patient voice to actively engage in efforts to make childbirth safer in our nation. Issues like patient-provider communications, racial disparities, quality of healthcare delivery, and patient information cut across all medical conditions and heavily contribute to preventable maternal deaths and illness.  Most importantly, it will provide training and tools to equip advocates to become effective champions for change. 

For more information about MoMMA’s Voices, please contact Coalition Program Manager Nicole Purnell at Nicole.Purnell@preeclampsia.org.